new things.....

milo has gotten some new stuff lately, first of all a kimba spring pediatric wheelchair....


i will have to post some pictures of him in it with the canopy and everything on it later...it's really cute, and i took these pics with my cell phone so there not very good....

second, he got a new stander, which i haven't gotten any pictures of yet, but they will be coming later......

and third he got his first pair of little shoes...we have never gotten him any before because, well, he doesn't walk so we just never have...but now that he has the stander his pt said we should use it with shoes on.....


and he is just so adorable in them, i just really cannot believe how big he is getting, he just looks less like a baby and more and more like a little toddler everyday....more pictures to come.

also, if anyone has some good tips on how to keep him happy and entertained while in his stander i would really appreciate it, thanks :)

march for babies....

so, we have decided to do the march of dimes march for babies this year.....



"one day... all babies will be born healthy, today... too many moms and families know the heartbreak of having a baby born fighting to survive.
i've joined March for Babies because the March of Dimes champions the needs of moms and babies in our community and across the nation. the money we raise for March for Babies will help:

support all-important research offering preventions and solutions for babies born too soon or with birth defects

educate women on things they can do to increase their chances of having a healthy baby

provide comfort and information to families with a newborn in intensive care

push for newborn screening and health insurance for all pregnant women and children

please help by donating today!

it's easy, safe and secure - just click to make your donation.

the mission of March of Dimes is to improve the health of babies by preventing birth defects, premature birth, and infant mortality."

please sponsor us :)

little man

my little man....isn't he a cutie?

please write a letter or send an email for emerson.

please take a little time today to go to emerson white's journal. many of you may have heard what's going on already, but basically what has happened is that emerson lives in colorado, it is where her house is, it is where her father and brothers are, it is where her parents pay taxes, ect....but emerson has been being treated at a hospital in nebraska, and since she has been in nebraska for so long colorado medicaid is dropping her. since she is not a resident of nebraska she cannot get medicaid from them. they have met their life time max for their private insurance, so medicaid is all they have, and over the past month emerson developed complications resulting in the removal of 90% of her new transplanted bowel, so she needs another transplant to survive. she has to have medicaid to have the transplant. without the transplant she will not make it. i really cannot beleive that her family is having to go through this right now, i cannot imagine the stress, the frustration, and the worry they must be feeling. i hope this situation gets quickly resolved and we can all help by writing letters and sending e-mails. on her blog emerson's mother (erika) has listed addresses and e-mail addresses, and alot more details. emerson white's journal

wordless wednesday....a day late

milo with diana......pt extraordinaire.



look at how good he is doing at holding his head up....



he was holding this position for at least 30 seconds at a time, then he would get a little tired and put his head down for a few seconds to rest, and then put it right back up again.



yay milo!!!

what to blog about.....?

i have had a little bit of writers block lately with the blog....maybe because things have been going so well with milo. he is just so pleasant & cute & sweet & cuddly & so on! he is getting much better at holding his head up, i don't think it will be too long before we have that one mastered.

one little concern i have right now is that he grinds his teeth...alot. so much in fact that one of his to front teeth appears to have the enamel wearing off. this may also have something to do with the meds he's on...im not really sure. i am going to bring it up at his pcp appointment next friday and see what his doctor thinks should be done. we have a neuro appointment coming up....and a gi appointment to set a date to switch from his g-tube to a button, we will be switching to pediasure following that appointment as well.

all and all it's been a pretty good start to 2009, my new years relolution, you ask? to try and stay more positive.