tag:blogger.com,1999:blog-77835948516897259782024-03-05T10:49:32.259-06:00I Heart Milojamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.comBlogger85125tag:blogger.com,1999:blog-7783594851689725978.post-82200674311448630422012-04-17T08:31:00.002-05:002012-04-17T08:37:38.604-05:00Build a Fort<div id="dE_H" style=";width:100%; height:100%; ;"><div id="drlimg"></div><br /><div> </div><div> <span class="Apple-style-span" style="-webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame- width: 564.5474363565445px; height: 376.36495757102966px; left: 342px; top: 248px;color:rgba(77, 128, 180, 0.230469);"><img id="imgfc05a752-18f6-47e0-ba2a-c300fdb2c13b" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhClwK_zXOvey892RZR29rCnpjZcBrcho60Q5a3aKlqLlE45OodW2mt_QvTqq6c9AJ2n7U-VIM2Tg5l8BtnlqzXFHmAevYpx6LDevBKP11k7_G9S6NFfCCnL68j5tJJPHgXFmrGRi2mvtM/" style="width:564.5474363565445px;height:376.36495757102966px;left:342px;top:248px;opacity:1" class="" mvc="false" rotate="183.7235870361328" scale="0.9" /></span></div><div><br /></div><div><span class="Apple-style-span" style="-webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875); -webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); ">What is more fun than building a fort out of sheets in your living room? According to milo, not much. We pretended we were dinosaurs living in a cave, milo was a velociraptor, daddy...a t-rex, and momma was a pterodactyl. </span></div><div><br /></div><div> <span class="Apple-style-span" style="-webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame- width: 458.04269313812256px; height: 305.36179542541504px; left: 289px; top: 212.5px;color:rgba(77, 128, 180, 0.230469);"><img id="img34986a96-c16a-4410-84d2-8a06d9aba0e4" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcE9z-DQDjvgUxDYXWkpBAgqg5pSIgc3ZCPB8MPzw8RibEyiYSHpEosdOZYli7l7Li8fMXfXEOUBSzfb9city5bSruO37E751LvWyiDj8kvuNk10W_-hjS1-_dXhhgaF5QYsLzUTy_LK8/" style="width:458.04269313812256px;height:305.36179542541504px;left:289px;top:212px;opacity:1" class="" mvc="false" rotate="-0.12612152099609375" scale="0.8" /></span></div><div><br /></div><div><span class="Apple-style-span" style="-webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame- color:rgba(77, 128, 180, 0.230469);">We played with flashlights, read a couple of milo's books, and whenever our dogs came close to the cave we would roar at them, because they were enemy dinosaurs of course.</span></div><div><span class="Apple-style-span" style="-webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame- color:rgba(77, 128, 180, 0.230469);"><br /></span></div> <img id="img7656c0ac-7a66-4b8c-b368-982ee26e393b" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhBSzeXMN0B73u3y737nM-4E__9INupRtMOjGZJWOx4PiJFgxCR9oD4jfMt-7nyvbW2X4ADfFpydsX9aaKyE1cGNWkzcDiMVNXAYHC3Wad8X1O1Ap8T68XKADiE_xjuU4o0mzm_n7DYTJc/" style="width:473.19434881210327px;height:315.46289920806885px;opacity:1" class="" rotate="-0.20700836181640625" scale="0.8" /><div><span class="Apple-style-span" style="-webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969); -webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame- color:rgba(77, 128, 180, 0.230469);"> <i>Although</i> <i>Champion did manage to sneak in for a little nap.</i></span></div><div><i></i></div></div>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com1tag:blogger.com,1999:blog-7783594851689725978.post-46206508883084286972012-03-31T21:05:00.000-05:002012-03-31T21:06:58.524-05:00Milo Is Going the Distance<iframe width="560" height="315" src="http://www.youtube.com/embed/FPn3Jv07iHs" frameborder="0" allowfullscreen></iframe>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com0tag:blogger.com,1999:blog-7783594851689725978.post-23106073544754770712012-03-30T09:00:00.001-05:002012-03-30T09:00:24.321-05:00i heart milo<div id="dE_H" style="background-image:none;;width:100%; height:100%; ;"><div>Hi all!</div><div><br></div><div>I really miss my poor neglected blog. I think about posting all the time but never seem to think of it when I actually have time to write a post.</div><div><br></div><div>I am going to try to post at least once a week from now on.....although I can't make any promises. I would like i heart milo to continue on, I think I have learned a lot in these last four years to share. I also still have a lot to learn and I have gotten so many ideas, so much advice, and so much support from all of the blogs of other mom's and dad's raising kiddo's with special needs. Blogging has been invaluable to me, no matter how long I may go without blogging, i heart milo and all of the blogs I follow hold a very special place in my heart.</div><div><br></div><div><img id="img21b8eea0-6f30-463a-931b-c0fd2eec66e0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJkZwDBdL7PYJGXn_uFzRbRPH3C_20Y6_6duZEsk01VBfVYxv28RxYieowRmnG2Htpj1flOHQvRpvVvuvqalBAi9O5etccCanuxNvpf1BE5SggbjkgyJhTj1-X91YQnPdRH3xneFpxxF4/" style="width:431.324369430542px;height:286.5781283378601px;left:275px;top:203px;opacity:1" class="" rotate="4.857421875" scale="1" mvc="false"><br></div></div>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com3tag:blogger.com,1999:blog-7783594851689725978.post-29468559043759972252010-10-25T12:10:00.017-05:002010-10-30T13:54:48.132-05:00vomiting 101<div>part one:</div><div><br /></div>it was suggested to me that i should do a post on our experiences with milo and his issues with vomiting, and how we got to where we are today, at a place where vomiting is at a nice minimum which we can handle without wanting to pull our hair out. i was going to do this all in one post, but it was getting too long, so it will be in a few parts.<div><br /></div><div>it took a lot of trial and error for us...</div><div><br /></div><div>i will start at the beginning. when milo was in the nicu he was a poor feeder. he would not take enough by bottle and had to get the rest of what he was supposed to be eating via ng tube...he would sometimes vomit up his feedings, and so after an upper gi it was attributed to gerd and he was put on reflux medication.</div><div><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHfSSJiTQLJhXDP9i_pHi6Z0rWWt6d5Cg4IOt0gYn0_XiI-XIgtn0a85U79d5X8yovFKtgjE_XNAzLJPWF1F1JprH1HOLcelUd5ZpqGpwu17U2lTYoEmBxoH_hVXVcD2k32So-gHgSgbQ/s1600/milopics3+040.jpg"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHfSSJiTQLJhXDP9i_pHi6Z0rWWt6d5Cg4IOt0gYn0_XiI-XIgtn0a85U79d5X8yovFKtgjE_XNAzLJPWF1F1JprH1HOLcelUd5ZpqGpwu17U2lTYoEmBxoH_hVXVcD2k32So-gHgSgbQ/s320/milopics3+040.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5533629074372804802" /></a></div><div>milo was sent home from the nicu taking about 3/4 of what he was supposed to be receiving for formula per day by mouth, and i guess the hope was that once home he would improve and take enough to keep growing and thriving. unfortunately that was not the case....his eating decreased and weight was lost, and failure to thrive became a reality. (keep in mind that at this point we did not know milo had neurological issues, pvl was diagnosed at 4 months when milo had his first seizures, and up until this point all of his issues had been deemed "preemie issues"). during these few months at home before he went back on ng tube feeds, while we were attempting to feed him 100 percent by mouth (a very horrible, nightmarish time for us, by the way) vomiting was not really an issue, probably because he didn't have enough in his stomach at one time to need to vomit.</div><div><br /></div><div>when milo was about 8 months old we got to a point where getting him to eat was becoming an impossible task, his seizures were out of control, he was crying non stop, not sleeping, and everything was utter chaos. we decided to take him to the emergency room not really knowing what else to do (at the time we did not have the support system of doctors, nurses, and specialists that we have now), we told them we needed help and a plan to help milo asap and could not wait around for follow up doctors appointments...we insisted that they could not send us home until we had a plan. they admitted milo. i consider that a major turning point for milo. </div><div><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjlkJz0gDLNWmPydlY6L3CIncHhEmwWa1_qI_oyQrrLGwdMxIfcvdpSZ94d1h77t8WeuXNJ4jzin9JYrkRvD7KvfQeTt6FNjbXj7aDfBVnWqyNEYn6Xp6vfQbGATBfs-6IIoYwYOAkW_lI/s1600/02-25-08_1226.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 240px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjlkJz0gDLNWmPydlY6L3CIncHhEmwWa1_qI_oyQrrLGwdMxIfcvdpSZ94d1h77t8WeuXNJ4jzin9JYrkRvD7KvfQeTt6FNjbXj7aDfBVnWqyNEYn6Xp6vfQbGATBfs-6IIoYwYOAkW_lI/s320/02-25-08_1226.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5533636129950686498" /></a><br /></div><div>the er doctor sat down with us and asked us what we would like to get accomplished during our stay at the hospital. i said that he needed to go back on tube feedings, we needed to do something different to gain control over his seizures, and that he seemed to be constantly fussy and uncomfortable and i wanted to know if there was anything that could help. so, he got an ng tube and we were taught how to administer feedings. he was switched from keppra to phenobarbital, and he was given a prescription for baclofen. </div><div><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqaCCDKPpGKWKLoCdULyKEK6AHakWYMfznKjUwW03OLm1uaG_nf4G4n1DY3Q993ikNIOJgqIkbgXmEmnKPaxHZIvDYAZ95DvmTHq9NjBPvsV1WOHXLjANUT4_-1aLBI-54DTalBZsOpJY/s1600/100_0305.JPG"><img style="float:right; margin:0 0 10px 10px;cursor:pointer; cursor:hand;width: 320px; height: 203px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqaCCDKPpGKWKLoCdULyKEK6AHakWYMfznKjUwW03OLm1uaG_nf4G4n1DY3Q993ikNIOJgqIkbgXmEmnKPaxHZIvDYAZ95DvmTHq9NjBPvsV1WOHXLjANUT4_-1aLBI-54DTalBZsOpJY/s320/100_0305.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5533638203532135042" /></a></div><div>once home we had a whole new milo. he was calmer and seemed happier. seizures had decreased some, he seemed more comfortable and we had a way to feed him when he would not eat, also we all got to get more sleep since milo could be fed through the night via tube we no longer needed to get up every 3 hours to feed him. </div><div><br /></div><div>but a common theme in the life of milo is that we often trade in one medical issue for a different one. </div><div><br /></div><div>milo was feeling better and getting the amount of food that he was supposed to...but not keeping it all in. ever since they had put him on reflux medication in the nicu we had not had any issues with vomiting, except for the occasional spit up, but that is probably because his stomach never got full enough for it to be an issue, but now it was definitely an issue! he was throwing up at nearly every feeding, about 25 percent of the feeding at first, but he was still getting more then he was prior to the feeding tube so at first he was gaining a lot of weight, and we thought that maybe the ng tube was causing his gag reflex to kick in so we hoped that when he got his g-tube placed it would pass. it didn't. </div><div><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1eBeEpizLzBNOlk97JOxb1kbvDnOKSgYEGC3BpgfGRGI_E2j3XwOuIzZ556tdtouLkop8q0rONjZtlP_gaUbwef4EHNsMLZEmJMngO9hAJnUawihwUAFHItu3yjHhZeHr6NZzeTl7SX8/s1600/phone22+00129.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 256px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1eBeEpizLzBNOlk97JOxb1kbvDnOKSgYEGC3BpgfGRGI_E2j3XwOuIzZ556tdtouLkop8q0rONjZtlP_gaUbwef4EHNsMLZEmJMngO9hAJnUawihwUAFHItu3yjHhZeHr6NZzeTl7SX8/s320/phone22+00129.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5533642894439291474" /></a><br /></div><div><i><span class="Apple-style-span" style="font-size: large; "><span class="Apple-style-span">stay tuned part two of vomiting 101</span></span></i><i><span class="Apple-style-span" style="font-size: large; "><span class="Apple-style-span">....</span></span></i></div><div><br /></div>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com6tag:blogger.com,1999:blog-7783594851689725978.post-61924903197836433092010-09-10T09:44:00.002-05:002010-09-10T11:04:20.682-05:00cutest video ever? i think so.<object width="500" height="300"><param name="allowfullscreen" value="true"><param name="allowscriptaccess" value="always"><param name="movie" value="http://www.facebook.com/v/1406925897941"><embed src="http://www.facebook.com/v/1406925897941" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="500" height="300"></embed></object> <div><br /></div><div>milo's new favorite game....milo, let me in.</div><div>video taken by my dad while we were in maine.</div><div>enjoy :)</div>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com7tag:blogger.com,1999:blog-7783594851689725978.post-10501837000808055122010-09-03T19:44:00.008-05:002010-09-03T21:33:10.735-05:00did you miss us?<div style="text-align: center;"><span class="Apple-style-span" style="color:#0000EE;"><u><br /></u></span></div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7R4D5SXPiF4wDg1AMa1L98KdtA8GB-1UQWOMc45Odz-Mja3VM9UctVH8HE2-wpo97P_X4bgnIoPVr0wA7NMrLzkSD2uLSMeyA9PBfwsfhWGi29a6k-k8rfW-N-Xr5B4OUQ3eBNjfSesw/s1600/DSC_0521.JPG"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 320px; height: 213px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7R4D5SXPiF4wDg1AMa1L98KdtA8GB-1UQWOMc45Odz-Mja3VM9UctVH8HE2-wpo97P_X4bgnIoPVr0wA7NMrLzkSD2uLSMeyA9PBfwsfhWGi29a6k-k8rfW-N-Xr5B4OUQ3eBNjfSesw/s320/DSC_0521.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5512871662851914786" /></a><br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOBUsI66koGTz279BcRdHXIQm7rW5u5P2F9mdVTD68vzuXHqOmsPnkLoKiJJbzyhk5UWg1_9OOdhMa0iMG3g5gB_cxnNzamGjvAZfo6GX1yYUKhEKveLhfrw76Wr6iCaB1Zy9nz-qHXNA/s1600/DSC_0708.JPG"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 320px; height: 213px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOBUsI66koGTz279BcRdHXIQm7rW5u5P2F9mdVTD68vzuXHqOmsPnkLoKiJJbzyhk5UWg1_9OOdhMa0iMG3g5gB_cxnNzamGjvAZfo6GX1yYUKhEKveLhfrw76Wr6iCaB1Zy9nz-qHXNA/s320/DSC_0708.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5512867838188837970" /></a>my blog has been sorta missing for the past several months....at first because things were so crazy and milo seemed to be sick all of the time, and then it was because things were going so well and we were enjoying it and taking it all in....and then it was crazy and milo was sick, and then things were going so well, and so on and so forth.....such is the life of a special needs momma....but a recent trip to maine (where i grew up) made me realize how many people were keeping tabs on milo and our family through this blog so i decided i need to get my act together and blog already!<div><br /></div><div>it would take me forever to fill you in on everything that has happened since last november....but i will give a summary for now...</div><div><br /></div><div>up until the last couple of months milo's vomiting was out of control and a constant source of stress and worry for us. after a lot trial and error, countless hours reading, googling, going over message boards and e-mailing moms with kids with similar symptoms we have seemed to narrow down milo's vomiting triggers, make some small changes to his daily routine and have cut down his vomiting by like 90%. needless to say the last couple of months have been bliss for our family. we were able to take a trip to maine to visit friends and family, milo is steadily gaining weight and becomes more vocal and more silly every day. his head control has improved greatly and he is trying really hard to master rolling. life without constant vomiting is wonderful!</div><div><br /></div><div>our trip to maine was so great, it was nice to get a break from the texas heat, and milo loved the constant attention from his grandparents and his cousin sophie. jesse and i got to see old friends who we missed so much, and eat at our favorite restaurants which we were homesick for as well.</div><div><br /></div><div style="text-align: center;"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWuy_WDPTsYITyoKJUVtw1tOR0TvzbcYKFBwkjXYC0OQn2PXYbvs5HnR2C1UtcVhfxvssAx5_X8lhDyaq7rHs-lqbuI767dKLRvwi8VjKs_8itiuCxZWFkT8lEFGHEnIXEvGmjRASteHc/s400/sophie-milo.jpg" /></div><div><br /></div>we have the greatest nurse, eric, and he has made our life so much easier. he is so supportive and it is nice to have someone to care for milo who cares so much about our family and about milo....he even came to maine with us for part of our trip, he is the best!<div><br /><div></div><div style="text-align: float:right;"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOgsJ6kESb5_h7aI2dFbJfbSsvBe9XSr8YhgrTP4zPin4ZimdFCsd0-eB9AH_N9anndBxzFZwSqvaBQCWyuQn4tKR9s23AAXRS4_gPbznFTAg8MBMpMTm-uUwSfCKf2fw_HZHVgaaq-Ao/s320/DSC_0649.JPG" /><br /></div><div style="text-align: float right;"><br /></div><div style="text-align: float right;">okay....well that is the first segment on my update of the last nine months, i am sure i will keep thinking of things i wanted to write and i will put them in my next post which will be much sooner than nine months from now!</div><br /><div style="text-align: left;"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmMDDJwiXn8STyDgjaVnLcxoVhLphFTxc9BHuMMEzK6x5mZLXlCZDria0vv6GTA3hjI5x8V7CT2SMkeHZGi1VImoP2Ghh-tKDh042DBlGCmu3VieKcUqwBWV02hu8SvttHXp47q7ujaik/s320/DSC_0562.JPG" /> </div></div>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com6tag:blogger.com,1999:blog-7783594851689725978.post-16144889654503331702010-06-07T21:33:00.003-05:002010-06-07T21:46:12.859-05:00need advice<div style="text-align: left;">okay, so i know that i haven't updated in forever and i am really, really sorry, and totally plan to resurrect this little blog in the very near future....but right now i need advice from anyone who is still reading in the dallas area. we really need to find a new g-i doctor, we feel that we aren't going anywhere where we are right now and the doctor we have now is too unaccessible for us with all of milo's special gi needs. we don't mind taking a little drive to like fort worth for example if it were for the right doctor, so if anyone has any suggestions it would be greatly appreciated.</div><div><br /></div><div>thanks.</div><div><br /></div><div style="text-align: center;"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitCdClRHhAvIvg_GaUoGdWrJUhXPFGehLAuQP1VhaKrcEC83fVNsLHme1cZR2pWX_DT5Y2MQoqN0-QeIp8MeetG-4jVt0tsTpUL5Y4R6nopH3KTFbwl2-MBOqwrRXRRRBqdv7aG7xJ8Bs/s400/DSC_0038.JPG" /></div>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com4tag:blogger.com,1999:blog-7783594851689725978.post-46335801561406519552009-11-25T14:45:00.003-06:002009-11-26T01:52:04.725-06:00guess who turns two on friday?<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhX4Up-dNYgZ1Heclpk_96bfs-_O4q_9HEx4MpZekJ6-OPttPcllwJT-8YdgAplzdwY3WFjITZkDgNV67ire0nDtRZUS1h8i9rrZZDeRlOSGcRfkiYDWaZkDEcU2cZ44_2qgNmZ_tIwlHM/s1600/001+slide+(1).jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhX4Up-dNYgZ1Heclpk_96bfs-_O4q_9HEx4MpZekJ6-OPttPcllwJT-8YdgAplzdwY3WFjITZkDgNV67ire0nDtRZUS1h8i9rrZZDeRlOSGcRfkiYDWaZkDEcU2cZ44_2qgNmZ_tIwlHM/s400/001+slide+(1).jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5408316881405122194" /></a><br /><div>i want to invite all of our blog friends in the dallas area to milo's birthday party...i think i have all of your e-mail addresses and i will send an invite with the address to our house to you, but if you want to come and i don't have your e-mail address then e-mail me @ luvhellokitty3@msn.com. there are some of you we still haven't met and i would really, really love to have you come. we are from maine and have lived in dallas for a couple of years but all of our friends with kids live in maine, so it would be really wonderful to have some other kids here, so like i said, you would be really, very welcome and i hope you can make it!</div>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com5tag:blogger.com,1999:blog-7783594851689725978.post-85355399165935374432009-11-15T22:53:00.005-06:002009-11-15T23:20:02.162-06:00warning...milo's cuteness may be contagious<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3q6RuNhIx0OwrOjkp9srlHkrhUyXx4Lq1KdoVszLWI7y5NTqtUHNYX_skLX8jlvrMKfXmZCBAnKmWk8RZFyMSMLm0tn_9E4VHhYJ1l7TpHlo4D094JDegHCrTX7Pjgvt5LEDLZX0hIoM/s1600/001+Page1+(1).jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 400px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3q6RuNhIx0OwrOjkp9srlHkrhUyXx4Lq1KdoVszLWI7y5NTqtUHNYX_skLX8jlvrMKfXmZCBAnKmWk8RZFyMSMLm0tn_9E4VHhYJ1l7TpHlo4D094JDegHCrTX7Pjgvt5LEDLZX0hIoM/s400/001+Page1+(1).jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5404564604493321090" /></a><br />so flu season has officially begun in the speed household. it all started last friday when jesse came down with conjunctivitis. saturday milo started to come down with a cold and a very nasty cyclic vomiting cycle thanks to said cold...which lead to a 12 hour day in the emergency room to get some iv fluids on monday. luckily they let us go home, but i blame those long 12 hours in the e.r. on me getting the stomach flu which i have had since tuesday night, today i am finally starting to feel human again.....and it has all come full circle with milo coming down with conjunctivitis today. so there you have it. i hope everyone else has had a calmer, healthier week. <div><br /></div><div> </div>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com3tag:blogger.com,1999:blog-7783594851689725978.post-31894598352996874972009-11-02T16:41:00.009-06:002009-11-02T19:01:31.051-06:00happy halloween!!!so a couple of weeks ago Jesse got laid off from work, AGAIN...it seems like we can't really catch a break lately. So all we have been doing for two weeks is sending out resumes, filling out applications, and a couple of interviews. He luckily found something, strangely enough it has nothing to do with anything he has ever done before, it is a sales position...he is excited about it and confident he will be a kick butt salesman, so keep your finger crossed for us that everything works out. <div><div><br /><div>Halloween was fun. I couldn't find a costume for milo that I liked, and I am a little bit obsessed with twilight, I have read all of the books and seen the movie a million times and am anxiously awaiting new moon...so....</div><br /><div>here is little edward cullen!</div><div><br /><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 288px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5399666232288135762" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqhOIZmeFIEsPPUTdRM1dUhaLCFKOo6-2aIjosuRdnoN1MD_JzX5pXhW6F3nsp3SbYk6OV78ThzfOc1vopJMx6M7XdBh_3kDmqz9jvpg8ptYmRHlKZhVQgzmqP5hIPWher4z5nwS-0LUI/s400/DSC_0625.JPG" /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglxFSVF08W-8zWLeUWNGiqQ3O_n1cWirHIAy9NsSF3awwFoJMznaPil-HUgegDlXc3g40rnxLxBG4VeWHYuuvSb4Q0Dv7qsGpIreNFQVcCmoWK5f-oH50gTGDsPxe1-tD95XammbDAO08/s1600-h/DSC_0680.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 273px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5399666244122037682" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglxFSVF08W-8zWLeUWNGiqQ3O_n1cWirHIAy9NsSF3awwFoJMznaPil-HUgegDlXc3g40rnxLxBG4VeWHYuuvSb4Q0Dv7qsGpIreNFQVcCmoWK5f-oH50gTGDsPxe1-tD95XammbDAO08/s400/DSC_0680.JPG" /></a><br /><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 288px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5399666251201712482" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg8T6FWQS7oQnQt5pZinDA3wGcHr6v7Q3SyM164rK2t9v1PCOy4hDsvMDUKajbkey_UJplOHJRZtHZ87jNuE30-cUQ7x90ArNcXA-8uHTRkgE_0W_0fLBTLi38KOOxmky2Zhikb9pRnHGg/s400/DSC_0537.JPG" /><br /><div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQZ-IufNGdXav562UQdHSsIH5vtP0slRVHRn8lgisMzyPn7UddDd5WFKJFZhzR6L1MvjiEpZ7LgGwprbVYbnho02JDP3YyYHjTW7JP2fsJ-WZWLruaEiW201et4io2ZdNb24AQmLYgQ2A/s1600-h/DSC_0556.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 266px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5399666242935919474" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQZ-IufNGdXav562UQdHSsIH5vtP0slRVHRn8lgisMzyPn7UddDd5WFKJFZhzR6L1MvjiEpZ7LgGwprbVYbnho02JDP3YyYHjTW7JP2fsJ-WZWLruaEiW201et4io2ZdNb24AQmLYgQ2A/s400/DSC_0556.JPG" /></a><br />and daddy was vampire bill from true blood...one of our favorite shows...</div><div><div><br /></div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiA_J03DxkEr26ccCH0lEDGaM4vRbzjeS7f8cYbVeniwxf3JV5OzX3RBuq7hjMctPinXfCTkdBXujnmyqVt6AIPxwPOtSbJjv6XO7yN1MTmLbjOhll84dsCJizcenCtx5F3vzx0Zy-U14g/s1600-h/DSC_0655.JPG"></a><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 266px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5399671060159366466" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitISjlr4toE24WYDiYg6cRIo0aLgPc4jnKPS3bpB-rXgfcwBHHRCgrAm7api26UXk5Cgx6LOY8aQMmqvgdP2rV6HK5DL-6pxytT7uOF4bGsIvUjt_hY72D-yLOGmFpE8ccYVltnyYvYZE/s400/DSC_0664.JPG" /> and mommy was very busy helping everyone get dressed up!</div><div><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUym3KvTRoBaavA7gqanBrcSOt5PLwJXYBM-sVeuj9xhOFhL7TwiBYXcPCrmrgLCMH7sg-LYiYmesdsPUxI-S96NTRpZeeJziKWpYs7Q7v80jaGa8qjrzV-RdOE9s5upNFujik0wleD8Q/s1600-h/DSC_0655.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 266px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5399673501769877170" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUym3KvTRoBaavA7gqanBrcSOt5PLwJXYBM-sVeuj9xhOFhL7TwiBYXcPCrmrgLCMH7sg-LYiYmesdsPUxI-S96NTRpZeeJziKWpYs7Q7v80jaGa8qjrzV-RdOE9s5upNFujik0wleD8Q/s400/DSC_0655.JPG" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiA_J03DxkEr26ccCH0lEDGaM4vRbzjeS7f8cYbVeniwxf3JV5OzX3RBuq7hjMctPinXfCTkdBXujnmyqVt6AIPxwPOtSbJjv6XO7yN1MTmLbjOhll84dsCJizcenCtx5F3vzx0Zy-U14g/s1600-h/DSC_0655.JPG"></a>hope everyone had a great halloween!<br /><div> </div></div></div></div></div></div></div></div>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com4tag:blogger.com,1999:blog-7783594851689725978.post-10699099950917164972009-10-02T21:20:00.004-05:002009-10-02T22:34:26.241-05:00still alive...first of all i want to apologize for not updating sooner. secondly i would like to thank all of the parents who left comments for us during our week long hospital stay...i appreciate the support we get from everyone who reads this blog and cares about milo, even though they may not have ever met him. the suggestions and information from parents who are going through or have gone through similar situations with their kids means so much to us, that information is so valuable. thank you.<br /><br />the basic consensus from the doctors at the hospital, (and milo's doctors since being released) is that milo is dealing with something called cyclic vomiting syndrome. i was skeptical at first, but after reading up on it, talking to his doctors, and of course reading some blogs of parents dealing with it first hand, the diagnosis really fits. so now this monster has a name, but so far we have not controlled it one little bit. right now his cycles are lasting about five days with only about three days of feeling well before another one starts. it sucks. he is on periactin which for some people can help, but it doesn't work on everyone, and so far doesn't seem to be helping. one of the best ways to cut down on the frequency of episodes is to figure out what is triggering them and avoid it...but we haven't figured it out so far.<br /><br />if you want to read a couple of really great articles about cyclic vomiting syndrome read these:<br /><br /><a href="http://www.5minutesforspecialneeds.com/920/the-truth-about-cyclic-vomiting-syndrome/">the truth about cyclic vomiting syndrome</a>, by michelle from <a href="http://www.5minutesforspecialneeds.com/">5 minutes for special needs</a>, and <a href="http://inthelifeofachild.com/">in the life of a child</a>.<br /><br /><a href="http://www.geocities.com/heartland/hills/4975/cvs_home.html">the disease in disguise</a>, by joyce.<br /><br />also, check out the <a href="http://www.cvsaonline.org/">cvsa</a>.<br /><br />i am really drained, but trying to stay positive.jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com3tag:blogger.com,1999:blog-7783594851689725978.post-35717817372757524522009-09-05T22:58:00.004-05:002009-09-05T23:41:14.623-05:00updateso it was looking as though we would be coming home tomorrow....but the vomiting has reared its ugly head again so it will be longer. i am bummed but do not want to come home until he is ready and am glad they are taking this thing seriously this time and not just dismissing it as a virus or something like they have in the past. one theory that is being tossed around is <a href="http://digestive.niddk.nih.gov/ddiseases/pubs/cvs/index.htm">cyclic vomiting syndrome</a>, the symptoms sound similar to what has been happening, although kids do not usually develop it until around age three, but even though its not common for a kid as young as milo to develop it, it is not unheard of. i don't know. we will see.<br /><br />here are some pictures of my little cutie at the hospital....<br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLZmouwWrzQnA2KuXTgcEn5WLAc1l5NyTHOVDsNBEO68uI2GHVNx9xuAIS0zGmz43xKDtbrB0grUSk3AdmElmTDK5pKaygxskqyAI9rXY4LdvSLIP21NbTcXL_CtY6YDhM0yVv9LJqyHE/s1600-h/IMAGE_149.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 400px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLZmouwWrzQnA2KuXTgcEn5WLAc1l5NyTHOVDsNBEO68uI2GHVNx9xuAIS0zGmz43xKDtbrB0grUSk3AdmElmTDK5pKaygxskqyAI9rXY4LdvSLIP21NbTcXL_CtY6YDhM0yVv9LJqyHE/s400/IMAGE_149.jpg" alt="" id="BLOGGER_PHOTO_ID_5378208590539092354" border="0" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0-5P8mZaxlhyphenhyphenPskpnrJBnO6JUXeqXfkBDery7iEJgA-L-yIpucVBCana1SPLKIDan5h3q_Cu_t5D9N8VXd-x6uRkYfWpP0wvmHgk0aSuQOyC131aZWRU8h5ZKbiBohoLyQqon6JL6yLA/s1600-h/IMAGE_127.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 400px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0-5P8mZaxlhyphenhyphenPskpnrJBnO6JUXeqXfkBDery7iEJgA-L-yIpucVBCana1SPLKIDan5h3q_Cu_t5D9N8VXd-x6uRkYfWpP0wvmHgk0aSuQOyC131aZWRU8h5ZKbiBohoLyQqon6JL6yLA/s400/IMAGE_127.jpg" alt="" id="BLOGGER_PHOTO_ID_5378209335870802130" border="0" /></a>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com6tag:blogger.com,1999:blog-7783594851689725978.post-38765030278659796972009-09-03T20:34:00.002-05:002009-09-03T23:37:13.931-05:00hospital stay number 5,320okay, well not really that many, but it feels like it. this time we actually ended up in the picu. i stayed in the emergency room with milo from about 10pm to 9am without sleeping, and then spent the whole day in the picu with him...sleeping a bit here and there when i could. i was a mess, milo was a mess...i am tired and don't really feel like getting into all of the details, but i will later, i promise. the short story is that like always with these hospital visits, it was gi issues, but pretty extreme this time, like vomiting blood extreme. so anyway, he was transferred from the picu to the gi unit at children's in dallas this evening. i will explain more later and try to keep everyone updated. goodnight.jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com4tag:blogger.com,1999:blog-7783594851689725978.post-39144271145393091072009-08-25T00:14:00.002-05:002009-08-25T21:40:00.822-05:00so much to say....i have been crazy busy lately...my head is constantly swimming and i am really having a tough time remembering the littlest things, let alone the big things. i need to blog more, to sort of sort out my thoughts, i think it would help but i only seem to think of doing it when i am busy and can't. i write whole blog posts in my head while driving to therapy, literally!<br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0AnKbsS-uoIwqwcP4bP0MeQY0z-10DxzSW3-EUqJa69ehYijVFEhfhaXNG4_ffJ6Vvafdqg33W4hOJMRuEHKbpNRzADeUyGN1aDBOoWnAi60X4T5gGD8Tnr6YFXPb6wCPlx2fS6Yj0jI/s1600-h/DSC_0134.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 264px; height: 348px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0AnKbsS-uoIwqwcP4bP0MeQY0z-10DxzSW3-EUqJa69ehYijVFEhfhaXNG4_ffJ6Vvafdqg33W4hOJMRuEHKbpNRzADeUyGN1aDBOoWnAi60X4T5gGD8Tnr6YFXPb6wCPlx2fS6Yj0jI/s400/DSC_0134.JPG" alt="" id="BLOGGER_PHOTO_ID_5373766207079204834" border="0" /></a><br />i am moving this week. so, that has kept me busy...i am not moving far, but to a bigger place. i will post pictures once we have our house all set up, it's so cute and i really love it. milo is doing pretty good. still having stomach issues, which i don't feel like writing about right now because it would really take a whole long post on it's own to explain all the symptoms and the fact that we, along with all of his doctors, don't know why he is still vomiting so much. it sucks. but what doesn't suck is the fact that milo has begun to be weaned off of his phenobarbital, yay!!! he will remain on topamax, and will probably need to remain on at least one seizure medicine indefinitely, but the doctor agreed with me that since he has not been having seizures for quite some time two were probably not necessary, so we just knocked one med off of the way too long list of medicines!<br /><br />also, in even bigger news, milo has finally reached 20 pounds! weight gain has always been an emotional thing for me when it comes to milo. when he doesn't gain well (which he hasn't for much of his life so far) i feel like i have failed as a mother or something. i know, it's dramatic and irrational, and not true....but hey, i am a girl and i do have a tendency to at times be dramatic and irrational....and i have cried the whole way home after many weight checks so it is a wonderful feeling to see the numbers steadily climb like they have been the last few months.<br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZ8E3Jy6_Odf7oPyjfD7CufopvvMkGZjJj0Y7XXjbZfSfMrySrO4sKd3Tb4pjTQZRHuz6Uro1RjYAPFWrWdZE_YGRRmxbZIUoQSSNtYa2qFOVOXcr3YuUhCAaFBtoGhC2kl8gTmoLlTBo/s1600-h/DSC_0118.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 358px; height: 238px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZ8E3Jy6_Odf7oPyjfD7CufopvvMkGZjJj0Y7XXjbZfSfMrySrO4sKd3Tb4pjTQZRHuz6Uro1RjYAPFWrWdZE_YGRRmxbZIUoQSSNtYa2qFOVOXcr3YuUhCAaFBtoGhC2kl8gTmoLlTBo/s400/DSC_0118.JPG" alt="" id="BLOGGER_PHOTO_ID_5373767916672993906" border="0" /></a><br />well, that is my milo update for now...i will post again soon, hopefully with some pictures of our new place.jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com5tag:blogger.com,1999:blog-7783594851689725978.post-43645692991352269442009-07-31T11:09:00.004-05:002009-07-31T11:30:49.330-05:00i have a question....we are planning on going to home to maine for christmas this year....we would be flying of course, and it dawned on me that milo turns two in november so he will no longer be allowed to fly on my lap...<br /><br />so my question is...does anyone know if they ever make exceptions to this rule? i would hate to spend all of that extra money getting him a seat of his own that he cannot even sit in. He is very small, only 19 lbs right now, and i doubt that by christmas he would be anymore than maybe a three or four pounds heavier. and he isn't sitting yet and has quite a way to go before he reaches that goal, longer than by christmas...<br /><br />so if anyone knows if it is possible to convince an airline to make an exception please let me know! thanks.jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com7tag:blogger.com,1999:blog-7783594851689725978.post-28116687185443151432009-07-26T10:20:00.001-05:002009-07-26T20:22:12.275-05:00on a lighter note...thank you everyone for your comments to my last post...the rational part of me knows that a chart is just a chart, and no piece of paper can determine what milo is capable of, but sometimes the irrational part of me takes over and i am a worried mess. i am very lucky that i have had the opportunity to have "met" such a wonderful supportive group of moms through this blog that can snap me out of it when i get like that.<br /><br />on a lighter note, if you want to feel uplifted and have a really good laugh, watch this video!<br /><br /><object width="425" height="344"><param name="movie" value="http://www.youtube.com/v/4-94JhLEiN0&color1=0xb1b1b1&color2=0xcfcfcf&hl=en&feature=player_embedded&fs=1"><param name="allowFullScreen" value="true"><param name="allowScriptAccess" value="always"><embed src="http://www.youtube.com/v/4-94JhLEiN0&color1=0xb1b1b1&color2=0xcfcfcf&hl=en&feature=player_embedded&fs=1" type="application/x-shockwave-flash" allowfullscreen="true" allowscriptaccess="always" width="425" height="344"></embed></object>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com3tag:blogger.com,1999:blog-7783594851689725978.post-74284427916030709152009-07-12T09:10:00.001-05:002009-07-12T09:26:12.614-05:00thinking about the future makes me crankythe closer we get to milo's second birthday the more scared i become....scared about his progress, scared he is still not sitting, scared that he isn't even close to being able to sit, scared that he still cannot hold his head up on his own, or roll over, or clasp objects in his hands for longer than a minute. i am scared about the future, and what they say about turning two...if a child with cerebral palsy isn't sitting by two they probably won't walk...that is really, really scary to me.<br /><br />if he were to turn two today then according to <a href="http://www.chsd.org/documents/CP/gmfcs.pdf">the chart</a> he would be in the level five classification of cerebral palsy, the most severe....the most severe? i can't even wrap my head around it, because to me he is this bright, charming, funny little boy who's body won't let him move correctly...i know he is developmentally way behind, i don't like to be around other kids his age because i don't like to start thinking about the stuff he should be doing at this age, i don't like comparing...it makes me sad and i avoid it, and now i really don't like looking at the cp chart...<br /><br />i hate that i am dreading his birthday, birthdays are supposed to be happy days you look forward to, and all i see is a deadline....milo needs to learn to roll over and have better head control by sept 27 or else he will be at the fifth level....as if it even worked that way, milo goes at his own pace and will roll over when he is ready. i try to stay positive...but sometimes it is really hard to keep a positive attitude when your just so pissed off at the whole situation, it's not fair...why milo? why anyone's child? i effing hate cerebral palsy.<br /><br /><div style="text-align: center;"><span style="font-style: italic;font-size:85%;" >but i love this guy...</span><span style="font-style: italic;">.</span><br /></div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLDqG0CxLfZy2iTU2Zzeb0lAfJa92SsqR4tupUM8E_CxcUMAqm3uGiWXW5aa-N8M0p_f716jvTu27RU_X7KsVFB4-sUiJPynMbFEPlBU8WMB04V9jl5uvl5W6FZZDP-BRm7vVfeEEOsNQ/s1600-h/DSC_0085.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 400px; height: 266px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLDqG0CxLfZy2iTU2Zzeb0lAfJa92SsqR4tupUM8E_CxcUMAqm3uGiWXW5aa-N8M0p_f716jvTu27RU_X7KsVFB4-sUiJPynMbFEPlBU8WMB04V9jl5uvl5W6FZZDP-BRm7vVfeEEOsNQ/s400/DSC_0085.JPG" alt="" id="BLOGGER_PHOTO_ID_5357579414637154434" border="0" /></a>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com13tag:blogger.com,1999:blog-7783594851689725978.post-90156569370112072662009-07-06T00:24:00.000-05:002009-07-06T00:28:10.972-05:00milo update....finally!<div style="text-align: left;">it's been so long since i last posted, I was supposed to tell everyone about the whole hospital stay but honestly there isn't too much to tell, like so many things with milo it was a mystery. he was vomiting repeatedly whenever he was on his j-tube feeds, when he wasn't on the feeds he was still not feeling too great but not vomiting, so at the hospital they stopped his feeds and put him on an iv for a couple of days and did a ton of tests, which all came back normal. when we started his feeds again he did better, so we went home.<br /></div><br />everything is going great right now, milo has been feeling really good, i think this is the longest stretch of him being healthy and feeling well we have had in a long time, if ever (knock on wood). the only issue he has been having lately is teething, which is a nice, "normal" issue that all parents deal with! he is getting his upper molars, and he is not happy about it, his z-vibe helps a lot...<br /><br />jesse recently got laid off from his job, which sucks. we have been doing a lot of job hunting for him...so cross your fingers that he finds something soon. although it has been nice having him home, and he has been really helpful, it would be nicer to have him working!<br /><br />so that is what is new with us.....i will leave you with some new photos of mister m!<br /><br /><div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGv8x-d7pYP8AkOHKVF4GOx0PpIq8PKgC8V6lVpZCcPKLu5FgRQOuJQR40lF_lWT96POzPDRZ3F0zPPdavRNpUL6K1tln29qLROnL_sYocw_GvjFH2IaMGrnWwAr_nFLIsHaOZDfXU64Q/s1600-h/DSC_0153.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 400px; height: 266px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGv8x-d7pYP8AkOHKVF4GOx0PpIq8PKgC8V6lVpZCcPKLu5FgRQOuJQR40lF_lWT96POzPDRZ3F0zPPdavRNpUL6K1tln29qLROnL_sYocw_GvjFH2IaMGrnWwAr_nFLIsHaOZDfXU64Q/s400/DSC_0153.JPG" alt="" id="BLOGGER_PHOTO_ID_5355212879029413730" border="0" /></a><span style="font-style: italic;"><span style="font-size:78%;"><br /></span></span></div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhs3oGZ1Cz9ZB2CFGMTXEyamBa25FvC02EG2Vx5Gk0o7qNW5hFrUDzhODP2G8nGfCcVUNXDzkkSsYLIKsaKSVVxfq2Ggq5Y7ictjPuanfcm0Ys8oqdDn-KIFXJZSF5LaHNYSC2gUbV98yU/s1600-h/DSC_0162.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 400px; height: 266px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhs3oGZ1Cz9ZB2CFGMTXEyamBa25FvC02EG2Vx5Gk0o7qNW5hFrUDzhODP2G8nGfCcVUNXDzkkSsYLIKsaKSVVxfq2Ggq5Y7ictjPuanfcm0Ys8oqdDn-KIFXJZSF5LaHNYSC2gUbV98yU/s400/DSC_0162.JPG" alt="" id="BLOGGER_PHOTO_ID_5355212890200089522" border="0" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG-88K7KM6ki0nztWNSvv-TLVhdmFNi9oqTT-o1qVU65wGTNfd43ATMn7Sz6pQ1FGfLjR0SNTm12QHs6CQGJi0BELHKHLc-bB3yocaGIYI2UqNSfxlYTJvSXTkWmbMbLqVr0LqZUTrgEc/s1600-h/DSC_0040.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 400px; height: 266px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG-88K7KM6ki0nztWNSvv-TLVhdmFNi9oqTT-o1qVU65wGTNfd43ATMn7Sz6pQ1FGfLjR0SNTm12QHs6CQGJi0BELHKHLc-bB3yocaGIYI2UqNSfxlYTJvSXTkWmbMbLqVr0LqZUTrgEc/s400/DSC_0040.JPG" alt="" id="BLOGGER_PHOTO_ID_5355212882399995410" border="0" /></a>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com4tag:blogger.com,1999:blog-7783594851689725978.post-31494430270191456432009-06-19T13:26:00.001-05:002009-06-19T13:27:56.811-05:00we are home!!i will elaborate more later....but milo is doing great now. thank you everyone for your words of support!jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com3tag:blogger.com,1999:blog-7783594851689725978.post-83025569606167394632009-06-17T11:01:00.003-05:002009-06-17T11:13:59.583-05:00hospital-landmilo has been admitted to children's hospital in dallas. he has been retching, dry heaving, and vomiting up stomach acid constantly since monday night, we went to the e.r. last night for the second time (we had gone very early tuesday morning but were sent home after five hours because they could not reach anyone from the gi department and they told us it was probably just a stomach virus). his poor little face is one big red puffy rash from the throwing up, and it definitely is not just a virus, he is only retching and vomiting when he is hooked up to his j-tube feed. they took a second x-ray last night (they had taken one in the am as well) and they are thinking that he is impacted. they are also doing a bunch of other tests and we are hoping to get to the bottom of what is wrong soon. i will keep everyone updated as much as i can, right now i have to get ready to head back to the hospital.jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com7tag:blogger.com,1999:blog-7783594851689725978.post-82553409700915194962009-06-04T17:55:00.001-05:002009-06-04T18:02:56.075-05:00wordless thursday<div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzMC53HHmW0EdQRHkC51aotwCj3cl-VjIwLR9MeIx4JntVT4zH8EhnvJoy5wO4MjCv4xdrTn_nhVJmocqwZnilvEGfBr4emzngpYna-oLARvwFsCbqYAZKT1J6nsgJ3pSQZ5uVrf1wKwo/s1600-h/DSC_0027.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 400px; height: 266px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzMC53HHmW0EdQRHkC51aotwCj3cl-VjIwLR9MeIx4JntVT4zH8EhnvJoy5wO4MjCv4xdrTn_nhVJmocqwZnilvEGfBr4emzngpYna-oLARvwFsCbqYAZKT1J6nsgJ3pSQZ5uVrf1wKwo/s400/DSC_0027.JPG" alt="" id="BLOGGER_PHOTO_ID_5343611008137141298" border="0" /></a><span style="font-size:85%;">rexy stealing a kiss from mister milo<br /></span></div>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com2tag:blogger.com,1999:blog-7783594851689725978.post-12154940472260903382009-06-01T22:18:00.001-05:002009-06-02T14:23:45.323-05:00i heart faces and kitties<div style="text-align: center;"><a href="http://www.iheartfaces.com/"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgynUdRqdb6c-LhZfPbqNcyauVJ5PsIxtmd87wiRKVFLIKxkv9TBnrUPgN1lkjDTAbqib3O-FfBjBZcWOiEPH93CShCcjpx0u1U5dmSV9aYUHwoBBcEvUo4gXhv4vBp9j0axk-JIPSqFWWh/s400/Button+-+Pets.jpg" /></a><br /></div><br /><br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEit6LfnKxqZ6cIirGEHq9BBKgP7n3DtUXHozaHyZER8paEKkvRAZMfaG7VxID60RDtBFnWlwnoX2H2Sq4yVAs6JOWMkgZV418Os99u-vIbXhFtKkowd3cEcPLzR6SaXNmXeWWvL-8QYOLc/s1600-h/DSC_0014-4.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 400px; height: 341px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEit6LfnKxqZ6cIirGEHq9BBKgP7n3DtUXHozaHyZER8paEKkvRAZMfaG7VxID60RDtBFnWlwnoX2H2Sq4yVAs6JOWMkgZV418Os99u-vIbXhFtKkowd3cEcPLzR6SaXNmXeWWvL-8QYOLc/s400/DSC_0014-4.JPG" alt="" id="BLOGGER_PHOTO_ID_5342812966818777938" border="0" /></a><br /><br />this week at <a href="http://www.iheartfaces.blogspot.com/">i heart faces</a> they have a special "anything goes" pet category. this is my little sister's cat spanky, he is a manx cat and so, so, sooooo cute! hope you all like it!jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com9tag:blogger.com,1999:blog-7783594851689725978.post-26756920916754315812009-05-29T12:27:00.003-05:002009-05-29T12:59:59.083-05:00a new look and a half birthdayi have revamped my blog...and finally made a banner with milo's adorable little face on it, which i have been meaning to do for a while. so much has been going on here lately. i keep meaning to sit down and write an actual post but never seem to get around to it. milo turned one and a half the other day, it has been a crazy year and a half too! so much has happened and i think i have probably aged about 10 years in that time, and i have the grey hair to prove it....but i am so in awe of milo, and so proud, and although i get really sad sometimes thinking about all he has gone through, and we as a family have gone through, i am so happy that he is my son...it's all so worth it, every last grey hair is worth it!<br /><br />we had to make a tough decision recently regarding milo's issues with vomiting...we basically had to decide whether or not milo should get a nissan fundo, or a gj tube. both had their advantages and disadvantages...nissans don't work for every kid, from what i was told it seemed like a 50/50 chance, it was either going to work great, or cause even more problems. the gj tube meant that milo would have to be hooked up to a continuious feed for a majority of the day, no more bolus feedings. so after alot of internet searching and talking to different people about it we decided to start with the gj tube. it was a less intrusive option and if it doesn't work it's very easy to reverse, unlike the nissan....and if it doesn't work a nissan is always an option in the future.<br /><br />he just had the procedure done yesterday and so far so good. he seems to be feeling better then i have seen him in quite a while. i can't imagine it was much fun for him vomiting several times a day, and when we did our practice feeding by mouth today he ate half a jar of gerber stage 2 mac and cheese which is the most he has eaten by mouth in a long time....since before the vomiting got out of control, so keep your fingers crossed that this does the trick and milo can start growing and thriving....milo has been a skinny baby for much too long, bring on the chubby baby cheeks!<br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0ssIrgq9uhSYGVYP8dnl-1wlvZ13e5XqGuJ5sXNwHqdIP79el_VBbnSjQb9V5nX-Pd_l3EUYIgsMT_SkkD07EcCHhQInUy4nTQXAl9nf5JNmFn7GETFaG0NQf3FOT6Sc1f2G7Gs7vS_s/s1600-h/DSC_00261.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 400px; height: 266px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0ssIrgq9uhSYGVYP8dnl-1wlvZ13e5XqGuJ5sXNwHqdIP79el_VBbnSjQb9V5nX-Pd_l3EUYIgsMT_SkkD07EcCHhQInUy4nTQXAl9nf5JNmFn7GETFaG0NQf3FOT6Sc1f2G7Gs7vS_s/s400/DSC_00261.JPG" alt="" id="BLOGGER_PHOTO_ID_5341306490091165122" border="0" /></a>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com7tag:blogger.com,1999:blog-7783594851689725978.post-89654807789401404532009-05-27T22:06:00.001-05:002009-05-27T22:07:55.732-05:00under constructioni'm changing the look of the blog....and have temporarily lost my blog roll and some other things, but everything should be fixed soon!jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com1tag:blogger.com,1999:blog-7783594851689725978.post-22288913542246852142009-05-18T21:27:00.004-05:002009-05-18T22:01:24.718-05:00i heart faces<div style="text-align: center;"><a href="http://www.iheartfaces.com/"><img src="http://www.livinglocurto.com/wp-content/uploads/2008/12/125x125.jpg" /></a><br /></div><br /><br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvh-_It-trhdpGwhIfb2cmvcWyxKvxs62scqJ1LeCfVacycW7b6Am9OwGxPUcptRnWpcxMZ-gReWS8vQAZH5NeIl6WLS527HGmoX1lXZ3cCXwqLu22Im0gRYXv_WT7ExT7l-vk5EqFIyA/s1600-h/foriheartfaces.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 400px; height: 362px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvh-_It-trhdpGwhIfb2cmvcWyxKvxs62scqJ1LeCfVacycW7b6Am9OwGxPUcptRnWpcxMZ-gReWS8vQAZH5NeIl6WLS527HGmoX1lXZ3cCXwqLu22Im0gRYXv_WT7ExT7l-vk5EqFIyA/s400/foriheartfaces.jpg" alt="" id="BLOGGER_PHOTO_ID_5337356509959668226" border="0" /></a><br /><p align="center"><span>this week at <a href="http://www.iheartfaces.blogspot.com/">i heart faces</a> it is the blurb book photo contest, and if your picture is chosen it will be in the blurb book....there is no theme per se, just pick you favorite picture. I really like the expressions that milo and his daddy are making in this picture, they are both too cute!</span><span style="font-style: italic;"><br /></span></p><p align="center"><span style="font-style: italic;">I</span><em> am submitting this photo into the </em><a href="http://www.iheartfaces.blogspot.com/"><em>www.iheartfaces.com</em></a><em> Blurb Book photo contest. I am granting <strong>I <span style="color: rgb(255, 0, 0);">♥</span> Faces </strong>permission to use my photo in a printed version of a book for commercial use and possibly advertising of a photo book on both the Blurb and <strong>I <span style="color: rgb(255, 0, 0);">♥ </span>Faces</strong> web sites.</em></p><br /><a href="http://www.iheartfaces.com/"></a><div style="text-align: center;"><br /><br /><br /></div>jamiehttp://www.blogger.com/profile/11209185117648248159noreply@blogger.com13