Wednesday, December 31, 2008

happy holidays

i hope everyone had a great christmas.....we did. I dropped the ball on picture taking and barely have any, but we did get milo's picture taken with santa and i will post it as soon as i put it on my computer. i really don't have too much to post and i am really tired but i realized it had been a while so i thought i would say we are still here, still good, and still reading.

Sunday, December 14, 2008

alternative therapy ?

it seems like there have been a lot of posts lately about alternative therapy from the blogs that i follow. now that milo has been doing pt, ot, and st for a while i have been thinking about alternative therapy and if there is more i could be doing. so now where to start? first of all i need to figure out what types of alternative therapy would be best for milo, there are a few that i am really interested in.

HYPERBARIC OXYGEN THERAPY -HBOT is a medical treatment that uses pure oxygen to speed and enhance the body's natural ability to heal. in many cases, children with brain disorders have brain cells that are "sleeping". they have enough oxygen to live but don't have enough oxygen to actually function like normal brain cells. these cells can't participate in the recovery process. with HBOT, oxygen bathes the brain cells, giving them enough energy to participate in the recovery process. HBOT also improves the blood supply to these nerve cells that are now awake but have no clear direction as what to do.

recently ellen over at To The Max mentioned how her husband squeezed himself into a narrow glass tube with max for his therapy, which made me want to learn more about HBOT, and now that i have researched it i think this may be a great therapy for milo.

CONDUCTIVE EDUCATION - the conductive education philosophy is based on the adaptive powers of the brain and neurological system. through repetitive tasks, the brain finds new ways to send messages to various muscle groups in order to execute and strengthen the desired movements.

holly over at Caleigh's Corner recently wrote about how caleigh started taking conductive education classes, and jacolyn's daughter grace over at Lieck Triplets goes to A Child Can Do All Things which is a non profit organization which teaches conductive education, it seems like a really awesome place and it happens to be in dallas, where i live.

ABR is a method of structural correction of musculoskeletal deformities. it is a hands-on method performed by the parents who learn the ABR technique and individual prescription of applications from ABR professional staff.

so many parents of the blogs that i follow and look to for advice and guidance are involved in ABR. bird over at Bird On the Street recently wrote a post
about all of the progress her son charlie has made since they started ABR. nelba over at Chocolachillie has a lot of information about ABR on her blog, as well as jacqui over at Terrible Palsy. i could go on and on because there are so many wonderful parents who write wonderful informative blogs who are doing ABR with their kids. it is something that i would love to do with milo, which brings me to the next part of my post.

how does one go about paying for alternative therapy if it is not covered by insurance? i really don't know how to go about raising the money to pay for alternative therapy, i've racked my brain trying to come up with ideas, but i've got nothing. we definitely don't make enough money to pay out of pocket. any suggestions or ideas would be really helpful....

Friday, December 5, 2008

quick update

we came home from the hospital on wednesday evening....milo is doing great, he still has a pretty bad cold but is feeling better everyday. thanks for the comments of support. it always means a lot to me.

Tuesday, December 2, 2008

milo is in the hospital...

he had a little cold since saturday...which got a lot worse overnight. he had a fever of 101.1 this morning, but what had me the most concerned was his g-tube site was suddenly deep red and oozing yellow stuff. his doctor couldn't fit him in so we went to the er and they decided to go ahead and start him on iv antibiotics and have him stay overnight. they also did a bunch of tests, and hopefully we will be able to go home tomorrow. i feel so bad for him....he obviously feels very yucky, and he has a bad cough so everytime he starts to fall asleep he starts coughing and it wakes him up...poor baby.