Wednesday, February 11, 2009

so sick of being tired and oh so tired of being sick

well, i'm not sick, but milo has been sick for going on three weeks...and now jesse has some sort of stomach bug, so i am definitely tired.

i had a birthday last week, i am 29 years old more year until the big 3-0. usually for my birthday i go out to the bars with my friends, have some drinks, usually too many drinks, and feel awful the whole next day...but that didn't really feel like it fit this year, so, i decided that i wanted to go the the aquarium, and then out to dinner. we had a really good time. milo loved the aquarium, he was really very interested in his surroundings while we were there, and so well behaved...there was not even one fussy moment the whole time we were there, it was wonderful.

as far as milo's sickness, i really cannot seem to figure out what is going on with him. he started to have cold symptoms towards he end of january, everything cleared up within a week except for nasal congestion and a very runny nose, we took him to the doctor and they thought maybe it was a sinus infection, so he went on antibiotics. during the cold, and then sinus infection he was very pukey, but milo tends to throw up quite a bit anyway and its always way worse when he is sick, so i wasn't too concerned, also he was on antibiotics which can cause an upset the antibiotics ended on friday, the runny nose was gone, but the vomiting was worse than ever, to the point that he was not keeping anything down. so now i WAS concerned about the vomiting. he had no fever and no signs of dehydration, even though he wasn't keeping much down, so on sunday i called the on call nurse who told me to give pedialite by tube until he is holding it down for several consecutive hours, then try formula, in small doses. he did a little better with holding down pedialite, but then when i tried formula again the vomiting resumed....and i had called the doctor's office first thing monday morning but they couldn't get us in until anyway, by tuesday i was a nervous wreck, milo had barely eaten for days (milo is primarily tube fed so when i say eaten i mean by tube), so i decided to go to the e.r., just in case.

the e.r, was busy, and we were there forever, and it sucked....we got there at about noon, and went home at about 11 pm. they took some x-rays of his tummy to make sure his tube was okay and there was not blockages anywhere. the x-rays came back okay, so, they decided it was probably a stomach flu, probably the same thing jesse has,.....then we stayed all day to experiment with his feedings...and how many ml/hr he could tolerate. so right now until this passes he is not getting his normal daytime bolus feeds, but instead a 24 hr continuous feed of 30ml/hr. he is keeping most of it down so far, and we will re-evaluate everything at his doctors appointment on friday.

one thing i am kind of wondering is if maybe we should have gotten the nissan wrap when milo got his g-tube, because vomiting is such an issue with milo, even when he isn't sick. if anyone has any advice about nissan wraps and vomiting i would love to hear it.


Poppy said...

I know the top picture is from last night in the ER.....How can such a tired, sick little boy look so beautiful???? Give him a kiss for Poppy (Sorry - I dont have any experience or answers to the wrap question)

jocalyn said...

Hi Jamie. I started to follow your blog from the CP listserve a while back. Milo's precious little face reminds me of my daughter's! We live in Mansfield, so we're kinda close. (and always in Dallas!)Do you guys go to Children's in Dallas? If so, who is your neuro? Anyway...I always learn something from your posts. Thanks for sharing! Hope Milo feels better. ~Jocalyn

Ellen said...

Hi there. I'm sorry for everything you are going through. ERs suck. Maybe Milo needs a specialist to figure out what is going on? I hope he starts feeling better, soon, it is so hard on everyone when the kids are sick.

tara @ kidz said...

Found your blog on facebook. So glad to meet you. My little one has CP as well (among other things). Your Milo is such a cutie. I hope he gets better soon!

Nelba said...

Loren had the same problem namely that he first had the g-tube placed and then about two months later the nissen. G-tube feeding actually worsens vomiting, because food comes from the wrong side. Food being swallowed goes from top top bottom, usually being aided by gravity. G-tube feeding pushes up from bottom to top.

If I could have my life over I would have had them do the two at the same time. But at the time we had a very inexperienced surgeon as our only option and he took way too long with even just the G-tube. If you have a paed surgeon who knows what he's doing, they can do both and do them very quickly.

The current vomiting is probably unrelated to that though. Unless your gut feel says otherwise and it persists.

Hope Milo feels better very soon.